Help Needed for Jagannatham & Mahesh -35 Years Suffering with LGMD (Limb Girdle Muscular Dystrophy) at Rampura village, Medak District

7th June, 2014

Last Sunday 7th June, 2014 our Volunteer Mr. Naresh Kumar visited their home and Donated a Newly Purchased Fridge for their business needs. We have waited couple of months to get the same from Coco-Cola, but we didn't. So Mr. Srikanth, who donated 15000/- for this purpose has advised to purchase a New Refrigerator. Its costs nearly 14,000/- Including Transportation and We have given 1,600/- cash for their medical expenses.

Our special thanks to Mr. Srikanth.Kidambi & his friends for donating such an amount which provides livelihood to a family.

Our Volunteer Naresh told me that  he is unable to explain the happiness & gratitude expressed through eyes by their family members after our donation in words. Once again our special thanks to Mr. Srikanth & his friends for extending their contribution for the livelihood of a needy family.

25th February, 2014

We have received the following suggestions in order to get the same thing for Free or at lesser Cost:

1. We can get the suitable fridge- if we know any Coco-Cola Dealer (if not for free, we will try to pay nominal amount)
2. We can get Seconds from Electronic Shops where many are exchanging their old ones
3. Even we purchase the new one it’s difficult to transport it to the destination. Even transportation companies take care of Packing but not the product
4. New goods which has slight damages also sold at lesser prize.

Purchasing a new one is not a big deal, but we can purchase Groceries and stationery to them with the same amount.

It’s already getting late, so please respond. Even you can extend any help directly to their family too with intimation to us.

On 3rd December, 13 Chapala. Venkatesh wrote:

On 03.12.2013 Me (Chapala Venkatesh & My Friend Mahesh Sidhipet, Visited Jagannatham's Home in Ramakkapet .  Their Condition Is Very Poor.  compare with Jagannatham his brothers condition was so sad. day by day they are much depending upon their parents.All you know We donated Air Bed Earlier that was narrow and not comfortable.they want another bed..

 They Requested us for:

1. 1 Fridge to sell cool drinks whether it may 1st hand or 2nd Hand
2. Other Wise They are planning to Improve Their Kirana Shop for that they Requested us  25000-40000 amount (then only they can put more groceries in shop. that will help to their Father to improve income .

So please respond Donors For This Major Cause..They are in Critical Situation... 

On 5th June , 2013 at 8:04 PM,  Naresh wrote:

As discussed earlier on 2nd June Sunday, our Volunteer & Treasurer Mr. Naresh Kumar. B visited their village 

• 5000/- worth Stationery and
• 1500/- Worth Air Bed Donated

For more pl visit @ http://ammasocialwelfareassociation.blogspot.in/2013/05/help-needed-for-jagannatham-mahesh-35.html

Requesting all active volunteers to contribution little to support many help requests available

On Wed, May 8, 2013 at 8:04 PM, ASWA wrote:

We have discussed about this case in our Monthly Meet and moved a bit alter growing through case history anb Verification Report of our volunteers Naresh & Karuna and decided to do the following

• We already supported total 3000/- on our 10th Feb visit (2100/- provided Groceries and given cash of 1000/- for their medical expenses)
• Karuna Personally donated 1500/-
• Ready to Donate 2 Airbeds
• Donating 2000-5000/- worth Books & stationery to the shop, there is school near by so we are hope it will increase their earnings a bit.
  
• Instead of giving money regularly we are trying to improve Products at their Provision Shop but they said its a village and we hardly get income. So we asked them to plan a shop in the nearest mandal headquarters of DUBBAKA. If they come with a plan we will support them.
• Their parents are old along their daughter they are taking care of these two. Transportation expenses are high as when they sick. They are not using regular medicine for this but they resistance is very low so many health problems occurring regularly

Verification of Report of our Volunteers Naresh Kumar & Karuna

• Family financial position: their monthly income include
• On Kirana shop: daily a maximum of Rs 25.
• Monthly on shop: 750/-
• His father pension: 1200/-
• Jaganath handicap pension: 500/-
• Mahesh handicap pension: 500/-
• Total income of family: 2950/-
• Expenses for medicines of Mahesh around 700/- p.m
• Jaganath and his family request (prayer): to earn for their livelihood. To make his sister financially independent.

On 11^th march 2013, me and naresh Kumar has visited Mr. Jaganath house in Rampura village near dubbak, Medak district. Jaganath and his brother named Mahesh are suffering from muscular dystrophy. Muscular dystrophy is a muscle disease which weakens the muscular system and hampers locomotion. There are many forms of muscular dystrophies. Normally in 90% cases this disease will be present in the body by birth. It comes out when there are hormonal changes at the age of 16-19 years. There is no medicine in allopathy. Only they can be supported by vitamin tablets. Ayurvedic and homeopathy can also only support to increase the life span by 5-10 years. (But not proved in any case)

Family: his family consists of five members. His father is a weaver by profession. His mother used to support in his work in weaving as well as she used to make beedis also. He has a younger brother who is also affected by this disease. He has a younger sister who stopped her studies to support the family and his brothers.

Coming to individual position

1. Jaganath: his age is 35 yrs. He is the eldest son in the family. He completed his schooling and joined his family business (work) of weaving. He wants to help the family to lead a respectable life and earn his livelihood. He is the first person who was hit by this disease. His form of disease is known as LGMD (Limb Girdle Muscular Dystrophy). The disease came out at the age of 22-24 years. At present his position is that he cannot be able to move from the place without a support.

2. Mahesh: his age is 30 yrs. He is the younger brother of jaganath. He completed his schooling and joined his family business (work) of weaving. He is the second person who was hit by this disease. His form of disease is known as Duchene muscular dystrophy (DMD). The disease came out at the age of 10-12 years. In this form the person gets restricted to wheel chair by the age of 20 years. His position is mostly deteriorated. His muscles are mostly deteriorated. He was hit by other ailments like hypothyroid in which the person loses his weight and he also is infected with acute amebiasis. His immune system also became weak.

Our responsibility:

• To provide all the required support (morally and financially) to smoothly run their lives.
• Provide them beds (air bed or water bed- single beds)-
• To renovate bathroom with western toilets.

We have many help requests and funds are little, Kindly extend your valuable contributions regularly. Just 100/- Per Month multiplied by no of donors give sufficient funds to help many poor & needy (like below). 

Love all - Serve all

Management Committee
Amma Social Welfare Association (ASWA)

Destitute (Ravi Kumar) taken for Treatment

Hi

Sri Jyothi garu, IDPL, Chinthal, who read about in News Paper, called us regarding a Destitute who is at the Bus Stop with Leg Injury. They are feeding him daily with Food packets but as a lady she is unable to go in depth to collect details. So on 19th May, 2014 Mr. Naveen Kumar & Naresh Kumar visited the person to assess the situation. 

Based on the conversation they found that he used to work as Watchmen in IDPL and has some circle of friends. He is full of self esteem/confidence/Ego what we can call is in our hands. His native is near Amalapuram and family is also staying there. He said he is OK and he wont come to any where. He also said previously he stayed in a home for few days and returned due to disputes with other inmates. Our volunteers advised him to come with us for treatment and then we can join in a old age home. He said another NGO from Sanga Reddy promised him to take to home in couple of days. So our volunteers returned by advising the Jyothi gari relatives to contact us if he is still there after weekdays. .

On 27th May, 14 our Volunteer Vikram taken him to Govt Ayurvedic Hospital, ESI from IDPL. We admitted him as in patient (I.P). Sravan and Haritha went there to support him. When the Volunteers came out he used to create disturbance in the ward. Even he used rash words with volunteers. He is unable to Walk also so doctors advised to take him out if our volunteers unable to stay there as attender.  We requested them to give permission to stay there till 5PM.

Then we talked to Sankar Garu of Amma Nanna Anadha Saranalayam, Choutuppal and taken permission to join him. But Ravi Kumar is refused to join in the home. We tried hard to convince him. He asked some days to decide. So we decided to taken them back to his place and do regular dressing for his wounds. .

After 15 days we gain wants to discuss reg joining him in a home. Meanwhile we also decided to send a letter to the address given by him to know the realities. He is saying many things and we are unable to judge whether those are correct or not. He said he don't have the phone nos of his family. Based on the different conditions prevailing outside we want to wait for the reply at least for couple of weeks then take a decision.

Thanks to Vikram, Sravan & Haritha for their patience in doing this. Vikram will visit and do the dressing once he returned from his native place. Meanwhile we have given Tabs and dressing material, as he is able to do dressing on his own. We will get back to you with the current status in few days.
 

Whether we are able to succeed or not, we tried. That is the spirit of ASWA volunteers. We always ready to do what we can.

Service to Mankind is Service to God. Kudos to Volunteers.

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Love all - Serve all

Management Committee
Amma Social Welfare Association (ASWA)

WEB SITE             FACE BOOK

Sunday 15th June, 2014 @ 9:30 AM - 14th Blood Donation camp @ Thalassemia&Sickle cell Society

Dear Blood donors and ASWA Volunteers,

  

In a healthy individual Red blood cells live in for about 120 days and then they will die. Can’t we donate rather simply wasting?

Mr. Avinash turned to our 6th Anniversary celebrations. He showed interest to conduct the blood donation camp to support Thalassemia children with his friends. So we are organizing 14th blood donation camp on 15-06-2014 @ 9:30 AM to 12:30 PM at Thalassemia Sickle Cell Society, Afzalgunj, Hyderabad.

We really felt happy for the initiation of Mr. Avinash & his friends in order to save little Thalassemia children. I request all the interested donors to donate blood. You can also see the little Thalassemia kids directly along with other services provided by Thalassemia society.

                     

VENUE

Thalassemia & Sickle Cell Society, Door No. 22-8-496 to 501; 1^st and 2^nd floor,                    

Chatta Bazar 'X' Road, Opp: City Civil Courts, Purani Haveli, Hyderabad - 500002

Who are coming from kukatpally region please reach @ S.R.Nagar Bus stop @ 9 AM and Contact Anil (SAVE LIFE PROJECT TEAM)@9666526698 or Nagababu @9032840686 or Srinivasa Prasad Rao@9177999263

BUS Route Map: Afzal gunj – Puranapool (towards Charminar) - You need to walk 3 minutes from the station

MMTS Route Map: Dabirpura (Towards Falknuma) – You need to walk 10 minutes from the station

           

2000+ children need 4000 units of blood every month. Please Donate Blood – Save Life

Love all - Serve all
P.Naveen Kumar

Amma Social Welfare Association  (ASWA) 

WEB SITE              FACE BOOK

Update on 6th Anniversary Celebrations of ASWA @ 18th May, Sunday@ 5.30 PM

Hi Friends

It's been more than weekdays after completion of our most existed and awaited 6^th Annual day celebrations. Lot of Positives and things to share in my deep corners of my heart. Here is an update....

We are very proud to have Volunteers, Donors and Supporters who are extending their valuable support throughout ASWA's journey. We know how important their support is. Few are able to extend their support by their active and direct participation in the activities and some extended their financial support and some other shared their suggestions and feedbacks for ASWA rapid growth. Thanks to one and all. It's our pleasure to remind and recollect all the SUPPORTERS of ASWA, which caused us to step into 7 successful years in Serving & Helping Others.

Our 6^th Anniversary celebrations showcased the Collective Dedicated & Disciplined Efforts of our Members, who are very determined to make the society a very happy place to live.

Speeches of the following honorable guests indeed inspired and motivated every one. We are very fortunate to listen to their golden words. There are no words to speak about speakers.  Our desire of doing noble deeds taken new path with their Straight, Firing and Touching Words. Hope every participant might analyze themselves after listening to their words. Thanks to each and every one.

 

Sri. Jawaharlal Nehru, Psychologist & Advocate, Motivational Speaker; Corporate Trainer; NLP Practitioner

• FREE COUNSELING BETWEEN 4PM & 7PM ON WEDNESDAY AT SEVA (free confidential counseling center) PADMARAO NAGAR, SECUNDERABAD;
• FREE MOTIVATIONAL SPEECH: AT YUVABARATI BETWEEN 2PM & 5PM ON 1ST SUNDAY OF EVERY MONTH

 Sri. Ratnavali, Founder of Thalassemia Sickel Cell Society : Thalassemia and Sickle Cell Society of Hyderabad is registered non profit organization (Reg no: 5359). It was founded in 1998 by patients, parents, doctors, and well wishers. This is the only society in Andhra Pradesh committed for the care and control of Thalassemia and Sickle Cell Disease. They are providing Free Transfusions and many other services to 2000+ Thalassemia Children.

Mr. Anil Kumar, Vice Principal, Govt. Ayurvedic College, ESI, Hyderabad

Mr. V. Ravi Kumar, HRD Trainer

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We started the event exactly at 5.30PM and event closed at 8.45PM. Event extended by 0.45 Min to listen the words Motivational Speakers who participated in our event unexpectedly.

• Thanks to Sarvani D/o. Sriram Rahi for showcasing her excellent skills in Classical Dance.
• Our Honorable Guests firstly lightened the lamp to remove the darkness latter lightened Volunteers & Participants with their Motivational words.
• Explanation of ASWA Projects (Activities) with the help of SKITS gained attention of the Participants. PROJECTED Videos and Volunteer Speeches given clear info on what we are trying to do. We always try to motivate our own volunteer by extracting their hidden skills. Explanation of Projects by them is also part of it.
  
  

  

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• Acting skills of volunteers attracted many faces. Thanks to all the participants of SKITS. Our special thanks to Dr. Sundar who is the writer of all these SKITS. Skit named "Kamsudi Koduku Cancer" got many awards. Participants enjoyed every moment of it in the duration of 15mins. Hope participants will also start USING NATURAL, COW BASESD & INDIAN PRODUCTS, which is the main theme & cream of the SKIT.​
• It's always our pleasure to motivate our Active New Volunteers with our BEST (NEW) VOLUNTEER APPRECIATION AWARDS, who spent their valuable time in activities continuously for more than 6 months.
• We also introduced "BEST BLOOD DONOR APPRECIATION AWARDS" to stress the value of regular blood donations to save little Thalassemia children.

• Our Volunteer Madhuri's anchoring is an added advantage along with
• Photography of Chiranjeevi & Sravan. Thanks for Sravan for recording the entire event. These are very inspiring sweet memories, which can be reviewed for further improvisation.
• Participants who selected via lucky dip distributed School Kits to Children of AAA Aasara Orphan Home
•  Special appreciations to all the BOSF Group Members (TMAD, MJR, Helping Hands, Helping Hearts)

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• We have also released 6 Years Journey Book Let
  
• We have invited guests with TULASI PLANTS
• 130-150 members participated in the event to bless us. Thanks to one and all for their participation. We bit disappointed with the turn up of Volunteers/Donors/Members/Supporters. They might have their own reasons for not attending rain at 4 PM etc., don't know why an Audio Function gets more people than a celebration like these
• This event may not be possible without support of Free Venue provided by Govt Ayurvedic College and Low cost Hirers provided by Mayuri Tent House, Kalyan Nagar

​​Volunteers worked really hard for more than 1 month to inspire as many participants. "VOLUNTEERS" You are truly motivating, what else we need to get inspiration rather than watching your collective work. I strongly feel and hope that you're hard work will definitely fetch the desired results.

Our special thanks to volunteers who turned up from Chennai (Srinivasa Kumar), Bangalore (Naveen), Kadapa (Venkatesh) and all others.

You can watch all the happenings in the below videos, don't miss speeches of Guests and Skits of Volunteers

VIDEO 1    VIDEO 2    VIDEO 3    VIDEO 4

VIDEO 5     VIDEO 6    VIDEO 7    VIDEO 8

VIDEO 9    VIDEO 10

(For videos you can check with ASWA in Youtube)

EVENT ALBUM

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Love all - Serve all

Management Committee
Amma Social Welfare Association (ASWA)

WEB SITE             FACE BOOK

Help Lines:   Hyderabad (H.O) : +91-9177999263, +91-9000234852, +91-9666664562

ASWA - BEST BLOOD DONOR APPRECIATION AWARDS

Hi,

To appreciate "Regular Blood Donors" who are donating blood regularly for Thalassemia Children and to create more awareness about Blood Donations, this year, we introduced "BEST BLOOD DONOR APPRECIATION AWARDS".  We have conducted 13 blood donation camps till now, in which one is at Ananthapuramu and another is at ECIL, excluding these total camps are 11. Our Management Board decided to select those who Donated blood regularly for more than 7 Times out of 11 in all camps or who donated 4 times in our last 5 camps. Fortunately we got 10 members, who are regularly doing it. There is no word to appreciate their dedication in regular blood donations to save little Thalassemia children.

From Next year, our criteria to select "Best Blood Donor" will be those who donated 4 out of 4 Camps.  Generally we conduct blood camp for every 3 months, so in a year we can conduct 4 Camps. So the persons who donate blood in all the camps will be our BEST DONOR.  Little Thalassemia Child knows how important ONE UNIT OF BLOOD is (either 1 time or regular) and ASWA & TSCS knows how difficult to find that 1 donor.  From this you can analyze how valuable a person, who is DONATING BLOOD REGULARLY.  We feel it's the right stage and right time to express our gratitude to all the regular blood donors, on behalf of little Thalassemia children. This is the story behind these "BEST BLOOD DONOR APPRECIATION AWARDS". It's not possible for us to appreciate others who donate directly in the Thalassemia Society or somewhere else, as we don't have data for those donations.

For us every donor and volunteer is equal and important, these awards are just to recognize the persons who stretched with an extra inch. ASWA is always proud to have those Blood Donors and volunteers with us. Hope all our Blood Donors will motivate more Blood Donors for the next camps.

Thalassemia Society have 2000+ Children who needs blood transfusion for every 10-15 Days, means they totally need 4000 units of Blood. Just imagine how many camps we need to conduct to reduce the deficit. So this is the right time for all of us to work collectively for a common and noble cause.

Let us decide and start of donating blood regularly for every 3 months from our end, we don't requires thousands to react at a time, our 1 initiation initially gives 15 more days life to a Thalassemic child.  

You all know "Blood cannot be manufactured. It can only come as a gift from people like you."

List of ASWA Best Blood Donors

Love all - Serve all

Mr. Naveen Kumar

Save Life Project Coordinator,
Amma Social Welfare Association (ASWA)

WEB SITE             FACE BOOK

Help Lines:   Hyderabad (H.O) : +91-9177999263, +91-9000234852, +91-9666664562