ON SUNDAY 8th may 2011 7-15 AM TO 11AM MANY ACTIVITIES ARE HAPPENING FOR AWARENESS ABOUT THALASSAEMIA PREVENTION.
LET'S JOIN OUR HANDS TO FIGHT AGAINST TAHALASSAEMIA.
Please let me know if any one wish to join.
Contact :
Manoj M-9885613697
Ranganath D 9885613697
Pavan : 9030001950
Venue:
Necklase Road –Eatstreet.
Time:7am-11am
Contact:
What is Thalassaemia
- It occurs because of defect in hemoglobin molecule.
- The production of hemoglobin in the molecule will be partly or completely stopped.
- Thalassaemia is an inherited disorder of the red blood cells.
- Thalassaemia Carrier: one of the two chromosomes of the cell are infected.
- Thalassaemia Major: two chromosomes are infected , basically It happends when both parents are Thalassaemia Carriers.
- This disease carries from parents to children because of the two infected chromosomes
THALASSAEMIA CARRIES AND DANGEROUS WHEN MARRIAGES BETWEEN TWO THALASSAEMIA CARRIERS.
Reduction of Thalassaemia Majors by marriage between Thalassaemia Carrier and Healthy Person
Types of Thalassaemia
There are three types of thalassemia that are of global importance:
- Alpha (α) - thalassaemia
- Beta (β) - thalassaemia
- Haemoglobin E (HbE) thalassaemia
Epidemiology of Thalassaemia
It is estimated that there are 80-90 million carriers of Thalassaemia worldwide and 60-70000 births of affected children every year. Most of these die in early life, often without a diagnosis or because of inadequate treatment
l People of Arab origin are over 3% carriers. In Central Asia 4-10% and in South East Asia, the Indian subcontinent and China 1-40% carriers (the very high rates in this part of the world are due to HbE).
It is estimated that there are 35 million carries of Thalassemia i.e. 1 in 25. Around 10 – 15,000 babies with Haemoglobinopathies are born in India every year. Few of the ethnic group like Sindhis, Gujarathis, Punjabis, Jains, Marwadis, etc is high risk communities for this disease
Signs and Symptoms
The child is normal at birth but between the age of 6 weeks and 2 years
parent or doctors can identify important signs like pale skin, restlessness, poor appetite and a mass (spleen) felt on the left side of the tummy.
Diagnosis
Patient subjected to special tests like Hb Electrophoresis (estimation of HbA2 and Hb F levels) and complete blood picture (CBP) will clinch the diagnosis.
Cost of Treatment
Cost of the Treatment
Particulars | Cost | |
1 | Blood transfusion | Free* |
2 | Leucodepletion filters (per transfusion) | Rs. 1,000/- |
3 | Iron Chelation | |
a) | Desferal (Parental Chelation | |
i. Infusion pump (once in life time) | Rs. 14,040/- | |
ii. Drugs (life long) | Rs. 8,000 to 10,000 / month | |
b) | Kelfer (Oral Chelation) | |
i. Drugs (life long) | Rs. 2,000 to 3,000 / month | |
c) | Tab. Asunra 400mg & 100mg | Rs.2300 to 9000 per month |
4 | Other drugs and disposables (life long) | Rs. 500 to 1,000 / month |
5 | Periodic medical check-up (life long) | Rs. 2,000 / year |
6 | Bone marrow transplantation (permanent cure) | Rs. 10,00,000/- |
Regards
Ranganath Daruri
9885613697
